DBA UK is a small, volunteer-led charity that provides support, research and hope to the families of patients with Diamond Blackfan Anaemia (“DBA”). This is a rare blood condition where the bone marrow fails to make red blood sells which are necessary for life since they carry oxygen around the body. As yet, there is no cure but many people with DBA are treated with monthly blood transfusions or a high dose of steroids. Some children might even require a bone marrow transplant. 

DBA UK brings together the families affected by this condition and provides information, support and access to latest medical research and professionals in this area. The charity also runs an annual conference for all DBA Families in the UK.

We are greatful to the family of Oscar Leon who referred DBA to us in the hope of helping more children affected by this condition.